Peripherial Neuropathy

htown16 said:
I've been diagnosed with ideopathic peripheral nueropathy. Looked up ideopathic, means "we don't have a clue what caused it". I'm not diabetic and I have good circulation in my legs. The neurologist tested me by using probes to test nerve pathways. Basically pins and needles feeling in the feet and toes. Not bad enough to bother me much but could get worse. If you have a similar sounding condition see a neurologist. Primary care and podiatrists don't have the equiptment to properly diagnose.
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Did you see a nerve specialist and have a bunch of nerve tests done on your back, butt, and legs?

IMHO, the value of a GP is that, if good, they know you and they can direct you to specialists that can at least rule things out - you don't need them to have all the answers, just to know what to watch for and who to send you to.

If it were me, I would see an oncologist as there are some causes that a neurologist might not think of. Too many specialists work with blinders on. That was one of the early indicators of my wife's cancer but was not caught until way late.
 
Well that was almost 4 years ago and my testing was done another few years before that. Thankfully it never got any worse and is actually quite a bit better. I attribute that to 3 one hours sessions a week in gym with mix of strength training and aerobics. It always bothered me the most when driving in fairly heavy traffic after an hour or so. Constantly holding foot on accelerator. My new vehicle has adaptive cruise and that helps a lot.
 
It’s now well over 4 years since I last posted in this thread. Since then my aches and pains in my feet has grown, to such a degree that I am now taking Amitriptyline daily in order to blunt down the discomfort. It hasn’t stopped the pains, but as I don’t want to go too heavily taking more than 10mg a day I will tolerate the reduced discomfort. Incidentally I’ve had Doppler testing done on my blood flow to my extremities and all is satisfactory, I am also having a further test Jan 2nd on nerve conductivity, so it will be interesting to find out what they find. This comes days after my recent fibroscan and ultrasound check on my liver that is showing signs of fatty liver disease. That in turn is likely to be as a result of interaction with the numerous tablets I take daily to help with my diabetes and to prevent strokes since my heart bypass surgery.

sorry to upset those of you who have to purchase your medical insurances, all of my daily meds and the numerous hospital visits, scans and appointments cost me nothing.
 
Flatspot said:
It’s now well over 4 years since I last posted in this thread. Since then my aches and pains in my feet has grown, to such a degree that I am now taking Amitriptyline daily in order to blunt down the discomfort. It hasn’t stopped the pains, but as I don’t want to go too heavily taking more than 10mg a day I will tolerate the reduced discomfort. Incidentally I’ve had Doppler testing done on my blood flow to my extremities and all is satisfactory, I am also having a further test Jan 2nd on nerve conductivity, so it will be interesting to find out what they find. This comes days after my recent fibroscan and ultrasound check on my liver that is showing signs of fatty liver disease. That in turn is likely to be as a result of interaction with the numerous tablets I take daily to help with my diabetes and to prevent strokes since my heart bypass surgery.

sorry to upset those of you who have to purchase your medical insurances, all of my daily meds and the numerous hospital visits, scans and appointments cost me nothing.
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Sorry to hear that mate. Hope you find something that works.
 
Flatspot said:
Many thanks. It’s just another challenge that life throws at you. ;)

The next one will be bleeding the front brake on the Commando tomorrow if I can grab some time out in the garage. :):)
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I have Trigeminal Neuralgia and have been through Gabapentin, Carbamazepine, radio frequency ablation and now Amitriptyline .
The ablation helped for four months . The Amitriptyline has been the most effective so far .
 
Richard Tool said:
I have Trigeminal Neuralgia and have been through Gabapentin, Carbamazepine, radio frequency ablation and now Amitriptyline .
The ablation helped for four months . The Amitriptyline has been the most effective so far .
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I just looked it up on ChatGPT and it does seem like a terrible affliction where it isn’t easy to isolate the root cause. Using Amitriptyline like I do is a good way to calm down excited nerves. I hope things can get better for you in time.
 
Flatspot said:
I just looked it up on ChatGPT and it does seem like a terrible affliction where it isn’t easy to isolate the root cause. Using Amitriptyline like I do is a good way to calm down excited nerves. I hope things can get better for you in time.
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Tell more about Amy.
I have it, but haven't taken it.
Do you still ride motorcycles while on it?
 
Amy has asked me not to talk about her, that’s between me and her ;)

The warning in the side of the carton says “this medicine may make you feel sleepy, if this happens do not drive, use machinery or tools, do not drink alcohol”. First of all I don’t drink.

I only take 1 x 10mg late in the evening, and it certainly helps me to sleep well, and it helps moderate the pain in my sore toes. I’ve not bothered to take it earlier in the day to find out what may happen. My prescription does allow me to take up to 5 tablets a day if I feel the need for greater pain suppression, I suspect that would be more likely to affect me if I took that many. I’m happy enough for now.

It will not affect my motorcycling abilities, the current cold and wet weather manage that already :( Given a fair dry, mild day I will get out on one of them as soon as I can.
 
Flatspot said:
sorry to upset those of you who have to purchase your medical insurances, all of my daily meds and the numerous hospital visits, scans and appointments cost me nothing.
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People like to say that the US has the best medical system and "you wouldn't want the ____ system" (fill in the blank).

Staying alive cost me about $2000/month in medical and insurance expense in 2024 and around $1600/month this year as the max out of pocket prescription cost was lowered from $8000/year to $2000/year starting 1/1/2025 but the insurance went up.
 
concours said:
Tell more about Amy.
I have it, but haven't taken it.
Do you still ride motorcycles while on it?
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I take 2 / 25mg tablets at bedtime . My initial dosage was 1 / 25 mg tablet at bedtime but that didn’t do much . Upping the dose has really made a difference. With most of these nerve blockers I believe it best to dose up or down gradually you are warned against stopping cold turkey .
It has not affected my riding as I only take it at bedtime.
 

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